在儿科 dystonia 中映射消症
Muserrefe Nur Keles1, Esra Serdaroglu2
1Department of Physiotherapy and Rehabilitation, Gazi University Faculty of Health Sciences, Ankara, Turkiye.
PloS one
|June 18, 2025
概括
患有 dystonia 的儿童中吞困难很普遍,大多数患有严重的吞障碍和高吸收风险. 早期检测和持续监测对于安全养和预防严重健康问题至关重要.
科学领域:
- 儿科神经学 儿科神经学
- 胃肠病学 胃肠病学
- 语音语言病理学 语言病理学
背景情况:
- dystonia 是一个重要的儿童运动障碍,其吞功能在很大程度上尚未被探索.
- 儿童的消化不良会导致严重的并发症,如吸血,需要专注的研究.
研究的目的:
- 为了评估患有 dystonia 诊断的儿童的消化障碍的患病率和严重程度.
- 评估儿科 dystonia 患者的口腔结构和功能.
主要方法:
- 包括患有 dystonia 的儿童,记录病史和 GMFCS/FOIS 水平.
- 评估了口腔结构,性能 (T-MOE,KCPS) 和吞安全性 (PEDI-EAT-10,水吞测试).
- 利用DDS和DMSS来确定失症的严重程度和阶段.
主要成果:
- 25名儿童 (平均年龄11.32岁) 参与; 56%的GMFCS水平为V.
- 100%的人患有口腔喉功能障碍;88%的人患有吸血风险增加 (PEDI-EAT-10 ≥13).
- 68%的人患有严重/严重的吞障碍 (DMSS);52%的人在3司的水吞测试中失败.
结论:
- 几乎所有患有 dystonia 的孩子都表现出吞功能障碍,通常是严重的.
- 存在很高的愿望风险,需要谨慎管理.
- 持续监测口腔功能和吞是安全养和预防并发症的关键.
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