增加社区成员对癌症研究的参与:使研究变得清晰的计划
R J Melillo1, C El Khoury1, J Blanding Godbolt1
1Sidney Kimmel Cancer Center, Thomas Jefferson University, Philadelphia, PA, USA.
Research involvement and engagement
|June 19, 2025
概括
"让研究变得清晰"计划改善了社区成员对癌症研究的理解,并增加了他们对临床试验的兴趣. 虽然对研究的直接影响是混合的,但该计划培养了对未来合作的信任和意愿.
科学领域:
- 基于社区的参与式研究.
- 参与癌症研究的参与.
- 在健康方面存在差异.
背景情况:
- 让社区成员参与研究至关重要,但面临着重大障碍.
- 让研究变得清晰 (社区学习和研究经验) 计划旨在将社区与NCI指定的癌症中心的癌症研究联系起来.
研究的目的:
- 评估沉浸式研究体验对社区成员和调查人员的影响.
- 评估社区成员对癌症研究和临床试验的看法和参与的变化.
主要方法:
- 一个为期6个月的沉浸式计划将社区成员与癌症中心调查人员结合起来.
- 参与者参与了每月的研究经验,并参加了各种癌症中心的活动.
- 基线和终点调查测量了感知和计划影响.
主要成果:
- 社区成员对癌症研究的认识和理解有所增加,对临床试验的态度有所改善.
- 虽然对临床试验的兴趣不断增长,但对临床试验对研究的直接价值的看法是不同的.
- 调查人员报告说,信任度增加,对社区文化有了更好的理解.
结论:
- 该计划提高了社区成员对研究的信任和透明度,尽管他们对科学过程的感知影响在6个月内受到限制.
- 研究人员越来越愿意与社区合作,这是未来研究参与的一个有希望的结果.
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