患有叶红细胞瘤的患者教育材料超出了推的可读性水平:对三种独立阅读仪器进行分析
Valerie L Armstrong1, Kelsey L Grabeel2, R Eric Heidel2
1Department of Surgery, Mayo Clinic Arizona, Phoenix, AZ, USA.
概括
在线患者教育材料对于染细胞瘤是太复杂了. 大多数资源超过了十二年级的阅读水平,阻碍了患者对这种罕见瘤的理解和共同决策.
科学领域:
- 内分泌学 在内分泌学.
- 医学教育 医学教育
- 卫生识字 卫生识字
背景情况:
- 患者教育对于有效的医疗保健至关重要,超过50%的患者在网上寻求信息.
- 推的在线健康材料应达到六年级的阅读水平,以获得最佳的理解.
- 乳红细胞瘤 (一种罕见的瘤) 的诊断和治疗需要明确的患者理解.
研究的目的:
- 为了评估在线患者教育资源的可读性,为 pheochromocytoma.
- 为了确定可访问的信息的任何空白,为患有黄染色细胞瘤的患者.
主要方法:
- 进行了对50个与染细胞瘤相关的在线患者教育材料的审查.
- 使用三个经过验证的仪器评估可读性:Flesch阅读方便 (FRE),简化测量Gobbledygook (SMOG) 和枪击雾指数 (GFI).
- 使用斯皮尔曼相关性来评估阅读仪器之间的关联.
主要成果:
- 在最终分析中包括了32个在线患者教育材料.
- 没有任何材料达到六年级推的阅读水平.
- 61%的资源超过了十二年级的阅读水平,FRE,SMOG和GFI的分数表明了显著的复杂性.
结论:
- 有一个显著的缺乏在线教育材料为染细胞瘤患者写在一个可访问的阅读水平.
- 当前在线资源的复杂性可能会阻碍患者的健康素养和参与治疗决策的能力.
- 开发适合患者的教育内容对于改善对染细胞瘤护理的理解和共享决策至关重要.
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