改善从儿科到成人病护理的过渡:专家意见
Flavio Villani1, Francesca Bisulli2, Francesca Darra3
1Division of Clinical Neurophysiology and Epilepsy Center, IRCCS Ospedale Policlinico San Martino, Genova, Italy.
Epilepsy & behavior : E&B
|June 22, 2025
概括
将患有的年轻人 (PwE) 转移到成人护理需要一个结构化的方法. 该TRUST项目开发了工具来评估需求,并改善这一关键阶段,以获得更好的长期成果.
科学领域:
- 神经学 神经学
- 发展心理学 发展心理学
- 医疗保健管理的管理
背景情况:
- 从儿科到成人治疗的过渡给年轻人带来了重大挑战,包括护理中断,耻辱和自治问题.
- 患有的年轻人的并发症 (PwE) 加剧了医疗和心理社会困难,导致不理想的结果和不足的支持.
- 有效的多专业过渡对于维持生活质量和解决药物坚持,社会融合和生活技能等关键领域至关重要.
研究的目的:
- 通过整体,综合的方法,增强患有的年轻人过渡期护理 (PwE).
- 开发和实施有针对性的调查问卷,以评估在过渡期间PWE和护理人员的医疗和心理社会需求.
- 评估过渡过程的有效性,并为未来的临床实践提供信息.
主要方法:
- 该TRUST项目涉及意大利各地的五次宏观区域会议与儿科和成人神经病学家讨论最佳实践和挑战.
- 通过专家对话制定有针对性的问卷,专注于系统地评估医疗和心理社会需求.
- 结合结构化数据收集与国家专家的投入,以识别和解决当前过渡期护理的差距.
主要成果:
- 国家专家对话和宏观区域会议的见解为评估工具的开发提供了信息.
- 该TRUST项目建立了一个框架,为过渡期护理采取更加综合和多专业的方法.
- 调查问卷旨在系统地评估PWE和护理人员的需求以及过渡过程的有效性.
结论:
- "信任"项目的举措旨在弥合普华永道的过渡期护理现有的差距.
- 将开发的问卷纳入常规的临床实践可以促进更无和个性化的过渡.
- 这种方法有可能改善医疗保健提供者沟通,患者参与,以及成人治疗的长期结果.
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