一个模型快速创新参与,招生,数据和样本收集在一个多元化的队列研究:见解从我们所有人参与者实验室
Janna Ter Meer1, Jessica Chen1, Romina Foster-Bonds1
1Scripps Research Translational Institute, Scripps Research, La Jolla, CA.
Mayo Clinic proceedings. Digital health
|June 23, 2025
概括
大型研究可以创新,以促进参与者的参与和保留,特别是对于代表性不足的群体. 提供补偿和灵活的捐赠时间改善了参与"我们所有人"研究计划的情况.
科学领域:
- 生物医学研究的研究.
- 卫生公平性健康公平性
- 参与者参与 参与者参与
背景情况:
- 我们所有人的研究计划旨在建立一个反映美国人口的多元化的队列.
- 提高参与者参与度和保留率对于队列代表性至关重要.
- 需要创新基础设施来使研究计划适应不断变化的需求.
研究的目的:
- 在我们所有人研究计划中创建和实施创新基础设施和倡议.
- 增强参与者的参与和保留,确保一个反映美国人口的队列.
- 解决招生,参与,生物标本收集和数据多样性的挑战.
主要方法:
- 建立了具有创新特定流程的"我们所有人"参与实验室 (APL).
- 专注于4个优先领域:加快招生,增强参与/保留,改善生物标本收集和扩大数据类型.
- 项目领导层对项目进行了成本效益评估,从2022年4月到2024年5月收集了参与者数据.
主要成果:
- 总结了APL的流程和举措,包括5项经过测试的具体创新.
- 提供补偿增加了任务完成率,其影响因背景和数量而异.
- 延长预约时间和基于社区的唾液套件分发促进了代表性不足的群体的捐赠.
结论:
- 大型研究可以快速创新,以实现计划目标,包括多样性.
- 确定了具体的策略,以改善健康研究的参与和保留.
- 这些发现为健康研究研究提供了可行的策略,特别是那些关注代表性不足的社区的研究.
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