患者的性取向和性别认同信息在瘤学的实践
Mandi L Pratt-Chapman1, Megan A Mullins2, Beck O Gold1
1Department of Medicine, GW Cancer Center, The George Washington University School of Medicine and Health Sciences, Washington, DC.
JAMA network open
|June 23, 2025
概括
在瘤学中收集性取向和性别认同 (SOGI) 数据是通过任务和综合工作流来促进的. 系统的SOGI数据收集需要领导层的支持和临床医生的培训,以实现有效的临床整合.
科学领域:
- 实施科学 实施科学
- 医疗保健服务研究 医疗服务研究
- 在瘤学瘤学.
背景情况:
- 尽管有国家建议,但性取向和性别认同 (SOGI) 数据收集很少被纳入临床实践.
- 了解SOGI数据收集的促进者对于改善瘤学医疗保健公平至关重要.
研究的目的:
- 在瘤实践中识别与收集性取向和性别认同 (SOGI) 数据相关的促进者.
- 探索各种美国癌症中心系统SOGI数据收集的障碍和推动因素.
主要方法:
- 定性研究采用半结构面试,对23个不同美国瘤机构的62名参与者进行了调查.
- 有目的的抽样确保了地缘政治地区和机构类型 (学术,城市) 的异质性.
- 数据分析涉及演编码 (实施研究整合框架) 和感应主题分析.
主要成果:
- 在30%的中心观察到系统的SOGI数据收集;在48%的中心观察到部分数据收集.
- 关键的促进者包括外部任务,电子医疗记录 (EMR) 工作流集成,结构化数据字段,感知临床相关性和领导力支持.
- 有系统收集的网站提供了更严格的培训; 不收集SOGI数据的网站表明需要授权.
结论:
- 多方面的因素,包括外部任务和内部组织支持,推动SOGI在瘤学中的数据收集.
- 收集的SOGI数据的多样化临床利用强调了需要持续的临床医生教育和改进的整合策略.
- 系统的SOGI数据收集需要由上下要求和自下而上的冠军相结合才能有效.
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