一项混合方法研究,以了解知识在患有状细胞病的年轻人过渡期中的作用
Ashima Singh1, Mahua Dasgupta1, M Muska Nataliansyah2
1Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI.
Blood advances
|June 24, 2025
概括
状细胞病 (SCD) 患者从儿科到成人护理的成功过渡需要量身定制的教育. 对自我管理的信心与更高的准备性得分相关,突出显示了早期,一致和全面的SCD过渡支持的需要.
科学领域:
- 血液学 血液学 血液学
- 儿科健康 儿科健康
- 过渡医学是过渡医学.
背景情况:
- 从儿科到成人医疗保健的有效过渡对于患有状细胞病 (SCD) 的人来说至关重要.
- 目前对特定教育需求及其对成功SCD过渡的影响的理解有限.
- 成年人对SCD管理的准备受疾病和医疗保健系统知识的影响.
研究的目的:
- 探索SCD特定的过渡准备评估得分与患者特征之间的关联.
- 研究患者对自我管理的信心与过渡准备之间的关系.
- 为了确定患者对SCD过渡教育内容和交付的偏好.
主要方法:
- 使用标准化工具对84名SCD患者进行过渡准备的定量评估.
- 基于年龄 (≤18 vs>18岁) 和自我报告的信心水平的准备分数的比较.
- 通过对9名年轻成年人进行半结构面试,对教育差距和偏好进行定性探索.
主要成果:
- 较年轻的患者 (≤18岁) 与老年患者相比,在预约和保险领域的准备度得分明显较低.
- 对自我管理的高度信心与疾病知识,药物管理,预约和保险等方面的得分明显高.
- 年轻人更喜欢过渡教育在青春期中期开始,每两年发生一次,并使用各种方法.
结论:
- 患者的年龄和信心显著影响状细胞疾病的过渡准备.
- 针对疾病知识,药物治疗,预约和保险的有针对性的教育干预至关重要.
- 青少年专注的,持续的,多模式的教育策略是青少年从儿科护理过渡的年轻人更喜欢的.
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