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退伍军人决定前列腺癌生殖细胞检测后与他们的瘤学家的知情同意:混合方法研究

Daniel H Kwon^1,2,3, Maren T Scheuner^1,2,3,4, Marissa McPhaul⁵

¹Helen Diller Family Comprehensive Cancer Center, UCSF, San Francisco, CA.

JCO oncology practice

|June 24, 2025

概括

许多患有晚期前列腺癌 (PCa) 的退伍军人因瘤学家的沟通不佳而对生殖线检测做出了不知情的决定,尽管决策冲突较低. 建议改善提供者培训和患者资源.

科学领域:

在瘤学瘤学.
遗传学是一个遗传学.
医疗保健服务研究医疗服务研究

背景情况:

建议对晚期前列腺癌 (PCa) 进行生殖线检测,以指导治疗和评估遗传风险.
在接受生殖线检测的患者中,知情同意至关重要.

研究的目的:

评估退伍军人事务所 (VA) 患有晚期PCa的患者是否对生殖线检测做出了明智的决定.
在知情同意讨论期间评估瘤学家的沟通.

主要方法:

混合方法研究涉及音频录制的患者瘤学家讨论.
管理决策冲突规模 (DCS) 和KnowGene规模.
采访患者,护理人员和提供者.

主要成果:

85%的参与者同意进行生殖线检测,总体决策冲突较低.
瘤学家经常未能传达知情同意的关键要素;患者缺乏知识,特别是关于危害和结果的知识.
障碍包括提供者的时间和资源有限;促进者包括以患者为中心的沟通和对VA的信任.

结论:

尽管决策冲突较低,但一些患者在不知情的情况下做出了生殖线检测的决定.
建议包括加强医疗服务提供者在知情同意和共享决策方面的培训,提高工作人员能力,改善患者教育资源.

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