在晚期癌症的年轻和中年患者中,息治疗的未满足需求:一种定性研究
Renhui Wen1, Xinyi Liu1, Yu Luo1
1School of Nursing, Army Medical University (Third Military Medical University), Chongqing 400038, China.
Current oncology (Toronto, Ont.)
|June 25, 2025
概括
晚期癌症的中国年轻和中年患者有各种未满足的息护理需求,包括症状管理,心理支持,社会支持和信息获取. 这些需求需要全面的战略来改善生活质量.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 定性研究是指质量研究.
背景情况:
- 晚期癌症显著影响年轻和中年 (YMA) 患者.
- 息治疗对于管理晚期癌症的复杂需求至关重要.
- 现有研究可能无法充分捕捉YMA中国患者的特定息护理需求.
研究的目的:
- 探索年轻和中年 (YMA) 晚期癌症的中国患者尚未满足的息护理需求.
- 确定在症状管理,心理,社会和信息支持方面需要的具体领域.
- 为制定有针对性的息护理干预措施提供信息.
主要方法:
- 使用最大差异原则的定性研究.
- 半结构化,深入的面对面采访,对16名患有晚期癌症的YMA患者进行面对面采访.
- 采访成绩单的诱导性内容分析以确定主题和子主题.
主要成果:
- 确定了四个未满足需求的主要主题:症状管理 (疼痛,恶心,疲劳),心理支持 (恐惧,终身担忧,家庭影响),社会支持 (儿童护理,家庭,同行和医疗保健专业人士支持) 和信息需求 (疾病轨迹,息护理,决策).
- 具体的子主题强调了疼痛缓解,抗药,疲劳管理,减少对疼痛的恐惧,实现更好的死亡,父母反应的支持,儿童保育援助,家庭和同龄人的情感支持,医疗人员指导,了解疾病进展,获取息护理信息,以及更多地参与医疗决策的需要.
- 这些发现揭示了这一群体未得到满足的息护理需求的复杂和多方面的特征.
结论:
- 患有晚期癌症的年轻和中年中国患者经历了各种未满足的息护理需求,这些需求往往没有得到充分的认可或解决.
- 医疗保健专业人员必须实施全面的战略,以有效地识别和管理这些多样化的需求.
- 未来的研究应该专注于开发验证的尺度,以准确评估未满足的息护理需求,并提高患者的生活质量.
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