自闭症的男性和女性医疗保健轨迹:考虑到诊断时的年龄和智力或发育障碍状态,是否存在任何差异?
Mélanie Couture1,2,3, Josiane Courteau2, Sébastien Brodeur4
1École de Réadaptation, Université de Sherbrooke, Sherbrooke, Quebec, Canada.
概括
自闭症的医疗保健轨迹因性别,年龄和智力障碍而异. 在童年时被诊断出患有自闭症的女性住院次更多,这突出了针对特定自闭症患者群体的护理差距.
科学领域:
- 神经发育障碍 神经发育障碍
- 医疗保健服务研究 医疗保健服务研究
- 公共卫生 公共卫生
背景情况:
- 自闭症诊断及其对医疗保健利用的影响需要进一步调查.
- 了解医疗保健轨迹 (HCT) 对于优化对自闭症患者的支持至关重要.
- 基于性别,诊断时的年龄和智力或发育障碍 (IDD) 状态的HCT的变化没有得到很好的描述.
研究的目的:
- 为了比较HCT2年后自闭症诊断的性别,诊断年龄和IDD状态.
- 确定不同自闭症患者子组在医疗保健使用和结果中的差异.
主要方法:
- 使用加拿大北克 (2012-2015) 的卫生行政数据进行了回顾性队列研究.
- 包括5289名第一次被诊断为自闭症的人.
- 使用状态序列分析分析分析的HCT,按性别分层,IDD状态和诊断时的年龄 (青少年/成年人).
主要成果:
- 随着时间的推移,整体医疗保健使用略有下降,女性的强度更高.
- 在HCT中性别差异受到IDD状态和诊断时的年龄的显著影响.
- 与男性相比,在童年时被诊断出女性的住院时间几乎是男性的两倍;被诊断出自闭症的成年人,特别是女性和IDD患者,显示出高住院率.
结论:
- 自闭症医疗保健轨迹因人口统计和临床因素而异.
- 晚些时候诊断的成年人,特别是女性和IDD患者的高住院率表明,护理连续性和可避免的住院可能存在问题.
- 需要有针对性的干预措施来解决自闭症患者在医疗保健中的性别和IDD相关差异.
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