瑞士关于健康数据共享的社会政治话语:从1992年到2023年为当前的公众信任建设吸取教训 - - 一项多方法研究
Federica Zavattaro1,2, Paola Daniore3, Viktor Von Wyl1,2,4,5
1Institute for Implementation Science in Health care (IfIS), University of Zurich, Zurich, Switzerland.
Swiss medical weekly
|June 26, 2025
概括
公众对瑞士健康数据共享的信任是由过去的负面经验所塑造的,特别是电子患者档案 (EPD). 解决实施障碍和吸引公众对未来的倡议至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 公共政策 公共政策
- 卫生社会学 卫生社会学
背景情况:
- 公共信任对于成功的健康数据共享倡议至关重要.
- 过去的经历显著影响了公众对卫生系统的看法和信任.
- 了解公众信任的演变是制定有效的信任建设措施的关键.
研究的目的:
- 从1992年到现在,分析瑞士关于健康数据共享的社会政治话语.
- 识别关键政策文件,影响民意的事件和影响公众信任的负面事件.
- 检查实施障碍和未来健康数据共享倡议的经验教训.
主要方法:
- 该研究采用了多种方法的方法.
- 对利益相关者采访的专题分析和专家意见的范围审查.
- 政府文件的政策分析和来自瑞士主要报纸的新闻文章分析.
主要成果:
- 数字化和COVID-19大流行对话语产生了积极的影响,导致政策变化.
- 电子病例档案 (EPD) 倡议的挫折对公众的信任产生了负面影响.
- 在政策,公共,专业和技术领域确定了实施障碍.
结论:
- 话语在很大程度上是由围绕EPD和数据丑闻的负面叙述所塑造的.
- 建议包括集中联邦协调,利益相关者合作,公众参与和以用户为中心的解决方案.
- 医疗保健专业人员的积极参与和数字化转型的财政支持至关重要.
相关概念视频
Principles of Disease Surveillance
188
Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
188
Ethical Standards I
985
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
985
Ethical Standards II
811
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
811
Ethics and Bioethics
1.6K
Ethics is a philosophical study of moral actions. Ethics attempts to determine what is valuable for individuals and society. It examines the rational justification of moral judgments and analyzes what is morally just, fair, and right. Bioethics is a sub-discipline of applied ethics that analyzes the philosophical, social, and legal issues in life sciences and medicine. Ethical theories serve as a foundation for decision-making and represent the viewpoints from which people seek direction. They...
1.6K
Longitudinal Research
12.5K
Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
12.5K
Issues And Trends In Healthcare Delivery System
5.9K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.9K


