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基于登记的监测在瑞士的儿科家庭呼吸系统支持:方法和初步发现
Sophie Guerin1, Christian Bieli2, Regula Corbelli3
1Pediatric Pulmonology and Cystic Fibrosis Unit, Department Women-Mother-Child, Service of Pediatrics, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
Swiss medical weekly
|June 26, 2025
概括
自2001年以来,瑞士儿科家庭呼吸辅助登记处发现,需要家庭呼吸辅助的儿童数量增加了六倍. 非侵入性支持和CPAP的使用有所增加,而侵入性方法和BPAP的使用有所减少.
科学领域:
- 儿科肺病学 儿科肺病学
- 呼吸系统医学 呼吸系统医学
- 公共卫生 公共卫生
背景情况:
- 对儿童的家庭呼吸系统支持在全球范围内有所增加.
- 自2001年以来,瑞士缺乏关于这一趋势的最新国家数据.
研究的目的:
- 建立国家未来的瑞士儿科家庭呼吸器辅助 (SwissPedHRS) 注册.
- 描述瑞士当前需要家庭呼吸器支持的儿童人口.
- 从2001年到2023年,分析家庭儿童呼吸支的演变.
主要方法:
- 来自所有瑞士照顾家庭呼吸器辅助儿童的中心的未来数据收集.
- 纳入标准:年龄小于18岁,支持时间≥3个月,瑞士随访.
- 从第一年 (2022年4月至2023年3月) 的数据分析,涵盖人口统计,病理和支持类型.
主要成果:
- 包括146名患者; 估计患病率为11.9/100,000名儿童.
- 最常见的疾病:神经肌肉 (38%) 和中枢神经系统 (25%) 的疾病.
- 主要支持:双阳性气道压力 (BPAP) (67%),连续阳性气道压力 (CPAP) (32%);14%的侵入性 (气管切除术).
结论:
- 瑞士PedHRS是瑞士第一个针对儿科家庭呼吸器支持的国家登记.
- 自2001年以来,患病率增加了六倍.
- 转向非侵入性支持 (增加CPAP,减少BPAP) 和更广泛的潜在条件.
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