探索父母的不确定性和发展障碍儿童的信息需求:一种定性研究
1College of Nursing, Korea University, 145, Anam-ro, Seongbuk-gu, Seoul, Republic of Korea.
Journal of pediatric nursing
|June 27, 2025
概括
发育障碍儿童的父母需要具体的信息来减少不确定性和压力. 护士主导的干预措施可以改善护理协调,改善面临发展挑战的家庭的结果.
科学领域:
- 发育障碍研究 发育障碍研究
- 父母福利研究研究
- 医疗保健信息传播 医疗保健信息传播
背景情况:
- 父母的不确定性对有发展障碍的儿童的福祉有重大影响.
- 有效的信息提供是减少这些家庭压力的关键.
研究的目的:
- 确定特定的信息类型,以减少父母的不确定性.
- 了解这些需求跨越残疾儿童的发展阶段.
主要方法:
- 定性研究涉及对19名家长进行深入采访.
- 参与者的孩子年龄从2岁到16岁不等.
- 传统的内容分析以确定主题和子主题.
主要成果:
- 确定了关于家长信息需求的三个类别,六个主题和12个子主题.
- 主题包括生命周期信息需求 (婴儿,学龄,青春期),医疗保健系统的斗争,以及争取正常化.
- 关键需求包括早期检测,教育支持,过渡到成年,综合资源和专业护理服务.
结论:
- 结果为护士主导的,基于信息的干预提供了数据.
- 干预措施可以改善护理协调,并支持宣传计划.
- 强调需要在医院协议和社区基础设施中提供政策支持,以协调护理.
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