通过COTIDIANA智能手机应用程序收集患者报告的结果:一项前性有效性研究
Nasim Nakhost Lotfi1, Francisco Nunes2, Pedro Matias2
1Department of Internal Medicine III, Divison of Rheumatology, Medical University of Vienna, Vienna, Austria.
RMD open
|June 27, 2025
概括
智能手机电子患者报告结果 (ePROM) 提供可靠的类风湿性疾病远程监测. 频繁的评估显示高有效性,支持自我管理和生活质量改善.
科学领域:
- 类风湿病学 类风湿病学
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 风湿和肌肉骨疾病的自我管理需要定期评估结果.
- 收集电子患者报告结果 (ePROM) 的智能手机应用程序有助于自我管理并改善生活质量.
- 评估使用智能手机ePROM频繁远程监控的可靠性和可比性至关重要.
研究的目的:
- 评估使用基于智能手机的ePROM频繁远程监控的可靠性和可比性.
- 评估ePROMs在患有风湿性疾病的患者中的测试-重试可靠性和合有效性.
主要方法:
- 招募的患者 (≥18岁) 患有肖格伦病,关节炎和牛皮关节炎.
- 患者每天和每周完成14天的ePROM (视觉模拟尺度),评估疾病活动,疼痛,焦虑,抑郁,疲劳和睡眠.
- 在1-6天的测试-重复测试间隔和最小可检测差异 (SDD) 中计算的类内相关性 (ICC);通过每日/每周ePROM相关性评估的收有效性.
主要成果:
- 分析了48名患者 (18名SjD,20名PsA,10名OA).
- 在1-3天的间隔内观察到高的测试重复测试可靠性 (ICC:0.83-0.98),在较长的间隔内增加SDD和减少ICC.
- 每日和每周的ePROM显示了所有评估领域的高相关性 (0.90-0.97),表明强的收有效性.
结论:
- 智能手机ePROM在较短的时间间隔中表现出稳定的可靠性,在较长的时间间隔中变化更大.
- 每天和每周的ePROM评估之间存在很高的收有效性.
- 通过智能手机的灵活,简短的ePROM可以保持对类风湿性疾病远程监测的一致可靠性.
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