走向患者参与途径:癌症和其他慢性疾病患者的混合方法研究
Paloma Casado Durández1, Eleuterio A Sánchez-Romero2,3,4,5, Alicia Negrón Fraga6
1Medical Specialist in Clinical Analysis, Hospital Universitario del Sureste, Madrid, Spain.
Cancer reports (Hoboken, N.J.)
|June 30, 2025
概括
慢性病患者经历了独特的参与挑战. 量身定制的,疾病特异性的护理对于提高慢性病患者的生活质量和患者赋权至关重要.
科学领域:
- 健康科学 卫生科学 卫生科学
- 心理社会研究 心理学研究
- 慢性疾病管理 慢性疾病管理
背景情况:
- 慢性疾病是全球死亡的主要原因.
- 了解慢性病的心理社会影响对于有效的患者护理至关重要.
- 这项研究调查了跨多种慢性疾病概况的患者参与体验.
研究的目的:
- 探索不同慢性病特征的患者在慢性阶段如何体验参与.
- 根据疾病类型确定独特的心理社会影响和参与需求.
- 为制定个性化,疾病特异性护理策略提供信息.
主要方法:
- 融合平行混合方法设计,整合定性焦点组和定量物理测试.
- 通过临床转诊和患者协会通过有目的和雪球采样招募了117名患者.
- 专题分析和统计分析 (R v4.1.3) 以在疾病概况中比较编码和情绪.
主要成果:
- 在疾病组之间观察到定性编码 (p < 0.001) 和情绪体验的显著差异.
- 与其他组相比,COPD和中风患者报告了不同的生活质量和情绪体验 (p < 0.05).
- 出现了三个主要主题:生活质量,情感体验和赋权,其中积极情绪占主导地位.
结论:
- 患有慢性疾病的患者经历了独特的参与挑战和需求.
- 乳腺癌患者优先考虑疼痛和日常功能;COPD患者专注于自我管理的自主性.
- 个性化,针对疾病的具体方法对于促进有意义的患者参与和改善结果至关重要.
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