对刚被诊断患有癌症的青少年和年轻成年人进行决策支持干预的评估:试点随机试验
Lamia P Barakat1,2, Shannon N Hammer1, Yansong Wen1
1Children's Hospital of Philadelphia, Division of Oncology, Philadelphia, PA, USA.
MDM policy & practice
|June 30, 2025
概括
基于网络的决策支持工具 (DECIDES) 对患有癌症的青少年和年轻人 (AYA) 是可行的和可接受的,可能会增加他们在治疗决策中的参与. 辅导支持加强了与DECIDES工具的参与.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 在治疗决策中的有限参与影响了青少年和年轻成年人 (AYA) 癌症的结果和幸福感.
- 需要适当的发展方法来加强决策参与.
- 一项试点随机试验评估了基于网络的决策支持干预 (DECIDES) 对于AYA癌症治疗决策.
研究的目的:
- 评估DECIDES干预措施对AYA癌症治疗决策的可行性,可接受性和可用性.
- 评估DECIDES的影响,有或没有教练支持,对AYA和护理人员的决策经验.
- 收集AYA,护理人员和临床医生对DECIDES干预措施的反.
主要方法:
- 一项试点随机试验,涉及新诊断/复发的AYA (15-24岁) 和护理人员.
- 随机分配到通常的护理,决定,或决定与教练.
- 关于知识,决策参与和遗憾的定量数据与采访中的定性反相结合.
主要成果:
- 据报道,DECIDES干预的高保留率,可接受性和可用性.
- 有教练的AYA和护理人员对DECIDES的参与度更高.
- 与通常的护理相比,DECIDES组报告了更高的共享决策,AYA决策参与和更低的决策遗憾.
结论:
- DECIDES干预是可行的,可接受的,可用于AYA治疗决策,有可能增加AYA参与度.
- 决策支持干预措施需要在整个治疗过程中对AYA进行进一步评估.
- 临近诊断的交付和教练的纳入可能会提高干预的有效性.
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