评估子宫内膜异位症患者对治疗性患者教育计划的期望,并与从业人员的看法进行比较
Emma Viteau1, Marianne Roy1, Jérôme Delotte1
1Department of Obstetrics and Gynecology, Reproduction and Fetal Medicine, Université Côte d'Azur-Centre Hospitalier Universitaire de Nice, Nice, France.
患有子宫内膜异位症的患者在诊断后立即希望个性化治疗患者教育 (TPE) 计划,以管理症状并改善生活质量. 医疗保健专业人员一致同意TPE.
科学领域:
- 妇科 妇科 妇科 妇科
- 患者教育 患者教育
- 慢性疾病管理 慢性疾病管理
背景情况:
- 子宫内膜异位症显著影响生活质量,诊断延迟和复杂的症状使情况复杂化.
- 治疗性患者教育 (TPE) 对慢性疾病有效,但对子宫内膜异位症缺乏具体指导方针.
- 这项研究解决了在子宫内膜异位症护理中需要量身定制的TPE计划的需求.
研究的目的:
- 确定患者对适应子宫内膜异位症特异性TPE计划的期望.
- 将患者的期望与医疗保健专业人员对TPE需求的看法进行比较.
主要方法:
- 匿名在线调查分发给参与子宫内膜异位症护理的患者和医疗保健专业人员.
- 调查探讨了对TPE会话内容和组织的偏好.
主要成果:
- 患者 (平均年龄34.4岁,诊断延迟9.2年) 绝大多数人更喜欢诊断后的TPE (87.8%).
- 患者的主要优先事项包括症状管理和改善生活质量,86.8%的患者甚至在没有确定的诊断证据的情况下也希望TPE.
- 虽然专业人员和患者有共同的优先事项,但在不孕不育,心理支持和性病学家参与方面出现了差异.
结论:
- 患者强烈倡导从诊断开始个性化TPE计划.
- 医疗保健专业人员在制定TPE计划时得到验证,强调需要灵活,量身定制的会议.
- 这项研究支持针对子宫内膜异位症患者的结构化,基于证据的TPE开发.
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