不知障碍的社会方面 - - 以多发性硬化症患者为例
Edyta Barańska1, Anna Jamroz-Wiśniewska2, Konrad Rejdak2
1Department of Culture and Communication Research, Maria Curie-Skłodowska University, Lublin, Poland.
Annals of agricultural and environmental medicine : AAEM
|June 30, 2025
概括
患有多发性硬化症 (MS) 的人面临着由于看不见的残疾而面临独特的社会排斥. 这导致痛苦和隐藏他们的状况,因为他们往往不被认为是残疾人.
科学领域:
- 神经学 神经学
- 社会学 社会学 社会学
- 关于残疾人的研究.
背景情况:
- 社会排斥是残疾人面临的一个重大问题.
- 多发性硬化症 (MS) 带来独特的挑战,导致一种独特的社会排斥形式.
研究的目的:
- 探索MS患者所经历的社会排斥的性质.
- 了解为什么这种特殊的排斥形式对受困者来说特别令人痛苦.
主要方法:
- 采用了定性研究方法.
- 进行了7次叙述性访谈,对至少7年被诊断患有多发性硬化症的患者进行了采访.
主要成果:
- 多发性硬化症的残疾影响社会运作,导致拒绝和排斥.
- 患有多发性硬化症的人报告说,他们的残疾往往是看不见的,导致不信任和指控假装症状.
- 受访者觉得不得不隐自己的情况,以避免社会困难和需要不断的理由.
结论:
- 隐形残疾,如MS中的残疾,可能会引起社会厌恶,并导致个人被认为是"奇怪的",而不是残疾人.
- 缺乏对残疾人的社会认可加剧了这个问题,导致隐藏已经隐藏的疾病的现象.
- 对于MS患者来说,核心问题不是残疾本身,而是缺乏社会对其残疾身份的认识和认可.
相关概念视频
Autism Spectrum Disorder
348
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
348
Intellectual Disability
167
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
167
Classification of Illness
8.0K
The meaning of illness is individualized to each person who experiences an alteration in health. In contrast, disease is a medical term indicating a pathological change in the structure and function of the body or mind. It is a condition that has specific symptoms and boundaries.
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe...
8.0K
Methods of Documentation VI: Case Management Model
633
The case management model is a multidisciplinary approach that involves healthcare professionals from diverse disciplines, such as physicians, nurses, therapists, social workers, and pharmacists, working collaboratively to address the various needs of patients. Each healthcare professional brings unique expertise and perspectives, contributing to a more comprehensive understanding of the patient's condition and tailoring treatment plans accordingly.
For example, a patient with a chronic...
For example, a patient with a chronic...
633
Nephrotic Syndrome III : Nursing Management
49
Nursing management for nephrotic syndrome adapts as the disease progresses, with strategies evolving to address advancing symptoms and complications.Early-Stage Management In the early stages, nursing interventions for nephrotic syndrome resemble those used in managing acute glomerulonephritis, focusing on symptom monitoring, fluid balance, and managing mild to moderate edema.Vital Signs: Regularly monitor blood pressure, pulse, respiratory rate, and temperature to promptly identify...
49
Factors Affecting Illness
4.5K
When a person's physical, emotional, intellectual, social development or spiritual functioning is compromised, this deviation from a healthy normal state is called illness. Illness creates stress that in turn harms individuals. Irritation, anger, denial, hopelessness, and fear are behavioral and emotional changes an individual experiences in the phases of illness. A variety of factors influence a person's health and well-being.
For instance, risk factors are connected to illness,...
For instance, risk factors are connected to illness,...
4.5K


