教导患者理解和使用患者报告的结果数据:干预设计和评估
Martha Burla1, Brocha Z Stern2, Andrew Bl Berry1
1Department of Medical Social Sciences, Feinberg School of Medicine, Northwestern University, 625 N Michigan Ave, Chicago, IL, 60611, United States, 1 312-503-4348.
JMIR formative research
|June 30, 2025
概括
在线会议ASK辅导,帮助患者了解他们的健康数据从关节炎护理通过共享知识 (ASK) 报告. 这种指导改善了患者的理解和准备,以便与临床医生讨论他们的治疗.
科学领域:
- 医疗信息学 医疗信息学
- 患者教育 患者教育
- 临床决策支持 临床决策支持
背景情况:
- 患者报告的结果 (PROs) 对个性化医疗保健至关重要.
- 通过共享知识 (ASK) 的关节炎护理报告分享了有关关节炎的PRO数据.
- 患者需要支持,以便在临床咨询中理解和利用PRO数据.
研究的目的:
- 描述和评估ASK辅导,一个在线小组会议.
- 评估患者对ASK报告和PRO分数的理解.
- 评估PRO数据在患者与临床医生对话中的使用情况.
主要方法:
- 在线进行了1小时的小组辅导课程.
- 收集了关于出席和自我评估学习的定量数据.
- 来自采访和调查的定性数据探索了动机,可接受性和目标实现.
主要成果:
- 高等教育和健康素养与出席率相关.
- 参与者对骨关节炎症状和信息资源有了更好的理解.
- 在线格式是可以接受的,会议目标得到了满足.
结论:
- 辅导有效地提高了患者对PRO数据的理解.
- ASK指导可以提高患者对临床咨询的准备.
- 这一干预措施显示出支持患者使用个人健康数据的前景.
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