患有COPD的人如何感知和沟通恶化:一项多国调查研究
Frits M E Franssen1, Ruth Young2, Job F M van Boven3
1Department of Respiratory Medicine, Maastricht University Medical Centre, Maastricht, the Netherlands.
概括
患有慢性阻塞性肺病 (COPD) 的患者经常难以识别和报告恶化. 他们对恶化的描述侧重于主观症状恶化和日常活动的影响,与临床定义不同.
科学领域:
- 肺部医学 肺部医学
- 患者报告的结果
- 卫生沟通健康沟通
背景情况:
- 恶化严重损害生活质量,加快慢性阻塞性肺病 (COPD) 疾病进展.
- 由于识别困难,患者往往不充分报告恶化.
- 了解患者对恶化的感知和沟通至关重要.
研究的目的:
- 研究COPD患者如何感知和沟通他们对恶化的经历.
- 为了确定患者报告的恶化和临床定义之间的差异.
主要方法:
- 从六个国家的在线小组中招募的COPD患者进行了一项带有开放问题的横截面调查.
- 针对性的文献审查和来自患者和临床医生的意见为调查开发提供了信息.
- 用专题分析来解释有关恶化经历的定性反应.
主要成果:
- 大多数受访者 (72.7%) 经历了每日呼吸短促,其中48.7%注意到每日症状略有变化.
- 恶化被描述为叙述,包括主观症状,管理,原因和情绪,没有统一的术语.
- 受访者认为恶化症状"比平时更严重" (52.8%) 或日常活动增加困难 (50.1%).
结论:
- 患者在识别恶化和他们的生活经历与临床语言之间存在差距.
- 患者叙述突出主观症状变化和功能影响.
- 在讨论指南中使用简单的语言可能会增强患者和医疗服务提供者的关于恶化的沟通.
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