遗传咨询培训计划对提供与残疾相关的教育的观点
Anna Miller1,2, Ashley Kuhl1, Rachel Sullivan1,3
1University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.
Journal of genetic counseling
|July 1, 2025
概括
遗传咨询师对残疾的教育至关重要,但往往有限. 这项研究发现,目前的培训主要使用课堂方法,错过了关键的基于社区的残疾教育,尽管计划希望共享资源.
科学领域:
- 遗传咨询 教育 遗传咨询 教育
- 关于残疾人的研究.
- 医学遗传学 医学遗传学
背景情况:
- 遗传咨询师在支持接受遗传检测的客户方面发挥着关键作用,需要全面的残疾教育.
- 现有研究表明,遗传咨询师对残疾的准备是不一致和不足的.
- 遗传咨询从业者和残疾倡导者都在培训计划中寻求增强与残疾相关的课程.
研究的目的:
- 在认可的遗传咨询计划中评估当前的与残疾相关的课程.
- 发现遗传咨询师培训中关于残疾的缺陷.
- 为了衡量项目领导对共享残疾课程资源的兴趣.
主要方法:
- 在美国和加拿大认可的遗传咨询培训计划的领导层分发了一项调查.
- 从51个项目中16个项目的领导层收集了回复.
- 数据分析的重点是当前的课程内容,交付方法,以及对协作资源的兴趣.
主要成果:
- 遗传咨询计划中的当前残疾教育通常依赖于教学课堂学习,经常强调医疗方面.
- 以社区为基础的教育,提供接触生活经验和支持资源,不太常见.
- 所有被调查的课程都对课程开发的共享资源表示了兴趣.
结论:
- 遗传辅导员对残疾的培训是可变的,并显示出重大差距,特别是在基于社区的体验式学习中.
- 有一个强烈的需求和表达的兴趣在残疾相关课程的协作开发的计划.
- 开发共享的教育资源可以帮助标准化和改善遗传咨询师在残疾主题上的准备.
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