确定并将消费者优先考虑的主题和结果纳入临床实践指南,以管理结石
David J Tunnicliffe1,2, Ieuan Wickham3,4, Allison Jauré5,3
1Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia. david.tunnicliffe@sydney.edu.au.
BMC nephrology
|July 2, 2025
概括
患者对石管理的优先考虑包括更好的营养教育,诊断和缓解疼痛. 将这些以患者为中心的主题纳入指南可以改善自我管理和生活质量.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 公共卫生 公共卫生
- 以患者为中心的护理
背景情况:
- 经常出现的结石对患者的生活质量构成重大挑战.
- 管理往往需要大幅度改变生活方式.
- 将患者的观点纳入临床指南对于相关性和遵守至关重要.
研究的目的:
- 描述将消费者优先考虑的主题和结果纳入结石指南的过程.
- 确保指导方针是相关的,并解决患者确定的需求.
主要方法:
- 在新西兰奥特亚罗亚,与患有结石的个人进行了两次研讨会.
- 参与者确定了包括在指南中的关键主题和结果.
- 对研讨会翻页图和成绩单进行了主题分析.
主要成果:
- 28名参与者优先考虑营养教育,改善诊断和个性化管理 (营养和药物).
- 关键的结果包括疼痛管理,公平获得护理,减少对复发的焦虑,提高生活参与度.
- 底层主题揭示了衰弱性疼痛,延迟诊断,不足的自我管理知识和生活选择的限制等问题.
结论:
- 患者确定的主题集中在症状管理上,以提高生活质量和减少家庭负担.
- 准则必须提供明确,一致的信息,特别是关于营养,以支持自我管理.
- 将消费者优先事项纳入指导方针有助于明智决策和以患者为中心的治疗结石.
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