开发和验证影响多发性硬化症患者应对调查问卷的先例
Ali Dehghani1,2, Abdolkhalegh Keshavarzi3, Yasaman Pourfarid4
1Department of Community Health Nursing, School of Nursing, Jahrom University of Medical Sciences, Motahari St, Jahrom, 7414846199, Iran. ali.dehghani2000@gmail.com.
BMC neurology
|July 2, 2025
概括
一个新的24项规模有效地衡量了影响多发性硬化症 (MS) 患者应对的因素. 这种工具有助于医疗保健提供者为MS患者量身定制支持.
科学领域:
- 健康心理学 心理健康心理学
- 心理测量 心理测量 心理测量
- 慢性疾病管理 慢性疾病管理
背景情况:
- 应对多发性硬化症 (MS) 受各种因素的影响.
- 识别这些先例对于有效的医疗干预至关重要.
- 需要一个验证的自我报告措施来评估这些有影响力的因素.
研究的目的:
- 开发和验证一个衡量影响多发性硬化症患者应对先例的尺度.
- 确定影响MS患者应对过程的关键因素.
- 为医疗保健专业人员提供一个工具,以更好地支持多发性硬化症患者.
主要方法:
- 进行了一项两阶段的方法研究.
- 对11名多发性硬化患者的采访进行的定性内容分析为初步项目开发提供了信息.
- 76项调查问卷经过严格的验证 (面部,内容,构造) 和可靠性测试,减少到24项.
主要成果:
- 因素分析确定了五个关键因素:社会支持,疾病意识,个人态度,精神/宗教信仰和经济/环境影响.
- 开发的24项问卷显示了高的内部一致性 (0.92) 和稳定性 (0.95).
- 该尺度被证明是评估MS患者应对先例的有效和可靠措施.
结论:
- 24项尺度是衡量影响多发性硬化症患者应对情况的先例的有效和可靠工具.
- 这种尺度可以帮助医疗保健提供者了解并解决多发性硬化症患者的特定需求.
- 这些发现支持在伊朗的临床和研究环境中使用这种措施.
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