大学学生对阿曼遗传性慢性病患者的预期耻辱:一个横截面研究
Ali Alkalbani1, Maryam Alharrasi2, Jansi Natarajan3
1Sultan Qaboos University Hospital, Muscat, Oman.
BMC psychology
|July 2, 2025
概括
奥曼的大学生对遗传性慢性病的污名度很高,尤其来自雇主和同事. 这凸显了减少负面标签和改善对受影响个人的支持的干预措施的需要.
科学领域:
- 医学社会学 医学社会学
- 公共卫生 公共卫生
- 遗传学 遗传学 是一个
背景情况:
- 被定义为负面标签的耻辱,可以加剧艾滋病毒/艾滋病等慢性疾病患者的健康结果.
- 遗传性慢性病可能会导致各种社会圈子的公众耻辱,这是阿曼研究有限的关注点.
- 这项研究调查了大学生对遗传性慢性病患者的预期耻辱感.
研究的目的:
- 评估大学生对遗传性慢性病患者的预期耻辱程度.
- 识别特定的社会群体被认为是污名的来源.
- 探索与非患者群体中较高水平的预期耻辱相关的因素.
主要方法:
- 对407名年龄在18-30岁的大学生进行了横截面研究.
- 使用自行管理的问卷,改编自慢性疾病预期污名度量表 (CIASS) 的问卷.
- 收集了人口统计数据和人们对遗传性慢性病的态度.
主要成果:
- 显著多数 (63.1%) 的参与者报告了对遗传性慢性病的高度预期的耻辱感.
- 同事和雇主被认为是耻辱的主要来源,其次是医疗保健提供者,家人和朋友.
- 不了解或不愿接受婚前查 (PMS) 的个人表现出更高的耻辱评分.
结论:
- 遗传性慢性病患者的支持性护理必须纳入他们的管理计划.
- 进一步的研究是必要的,以了解慢性疾病的耻辱的多面性质.
- 针对公众认知和意识的干预措施,特别是关于婚前查的干预措施,可能有助于缓解耻辱感.
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