不同慢性病患者群体的疲劳:患者的经验和需求
Eline Schade van Westrum1, Ellen K Hoogeveen1,2,3, Birit F P Broekman4
1Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.
Clinical kidney journal
|July 2, 2025
概括
慢性病 (CKD) 患者经历显著的疲劳,影响所有人群的日常生活. 解决这个问题需要更好的支持,讨论,以及在日常护理中的多学科症状管理.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 患者报告的结果
- 慢性疾病管理 慢性疾病管理
背景情况:
- 疲劳是慢性病 (CKD) 的普遍和负担重重的症状.
- 以前的研究主要集中在透析患者使用定性方法.
- 需要对各种CKD人群的疲劳有全面的了解.
研究的目的:
- 探索经历过的疲劳负担,它对日常生活的影响,以及各种CKD人群中感知到的原因.
- 调查CKD患者对疲劳的经验和需要的支持,讨论和治疗.
主要方法:
- 一项全国性的调查与荷兰病患者协会共同创建.
- 用描述性统计数据来分析数据.
- 结果按CKD患者群体 (透析前,透析后,移植后),性别和年龄分层.
主要成果:
- 在所有CKD人群 (n=414) 中报告了高疲劳负担,其中94.7%的人经历了疲劳.
- 疲劳是86.3%的患者的前三大负担性症状,原因多因素.
- 许多患者 (32.1%) 很少与医生讨论疲劳问题,67.8% 没有接受治疗,58.6% 认为现有的治疗方法不足. 较年轻的患者和女性报告了更大的限制和社会支持不足.
结论:
- 在所有CKD患者群体中存在显著的疲劳负担和不足的支持.
- 在科护理中,对疲劳的结构性测量和讨论至关重要.
- 需要加强社会支持和以患者为中心的多学科症状管理,以解决未满足的患者需求.
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