一个关键的COSMIN知情范围审查复杂的腹壁质量生活工具:为患者驱动的工具开发提出了理由
Catherine Oxley1, Olivia Smith1, Asim Abbas1
1York Abdominal Wall Unit, York & Scarborough Teaching Hospitals NHS Foundation, Trust, Wigginton Road, York, YO31 8HE, UK.
在复杂腹壁 (CAWH) 手术中测量与健康相关的生活质量 (HRQoL) 的现有工具具有发展限制. 需要进一步开发,以创建具有强大的心理测量性能的患者知情仪器.
科学领域:
- 手术结果研究研究.
- 医疗保健服务研究 医疗服务研究
- 医疗器械评估 医疗器械评估
背景情况:
- 与健康相关的生活质量 (HRQoL) 对于评估复杂腹壁 (CAWH) 手术的结果至关重要.
- 选择合适的HRQoL工具是具有挑战性的,因为仪器的多样性和心理测量可变性.
研究的目的:
- 使用基于共识的测量仪器选择标准 (COSMIN) 框架,系统地审查和评估六种CAWH特定的HRQoL工具.
- 评估这些CAWH特定的HRQoL仪器的临床适用性和发育稳定性.
- 评估CAWH特定工具的设计,内容和方法质量,而不是术后结果.
主要方法:
- 根据PRISMA-ScR,COSMIN和乔安娜·布里格斯研究所 (JBI) 的指导方针进行的范围审查.
- 在2024年3月搜索了四个数据库 (MEDLINE,EMBASE,Cochrane CENTRAL,ClinicalTrials.gov) 关于CAWH特定HRQoL工具的研究.
- 评估了COSMIN领域的工具:概念框架,心理测量特性,受访者负担和患者参与.
主要成果:
- 确定了六种CAWH特定的HRQoL工具:CCS,HerQLes,EuraHS-QoL,AAS/mAAS,AHQ和HERQL. 这些工具包括:
- 虽然有用,但没有一个在最初的领域开发中完全整合了患者的观点.
- 所有工具都显示内容和结构有效性的差距,比较心理测量数据有限.
结论:
- 现有的CAWH特定的HRQoL工具具有显著的发展限制.
- 目前没有一个工具能够完全整合患者的观点,或拥有完整的内容和结构有效性.
- 需要完善现有工具或开发新的,以患者为基础的,具有强大的心理测量标准的工具.
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