检查残疾儿童家长的慢性悲伤:横截面研究
Samaa Al Anazi1,2, Naseem Alhujaili3, Dina Sinqali1,2
1King Abdullah International Medical Research Center, Jeddah, Saudi Arabia.
JMIR pediatrics and parenting
|July 2, 2025
概括
在沙特阿拉伯,残疾儿童的父母经历了慢性悲伤 (CS),其特点是失去和不平等的感觉. 有效的管理涉及内部因素,如宿命主义和外部支持系统,对父母的福祉至关重要.
科学领域:
- 心理学 心理学 心理学
- 社会学 社会学 社会学
- 公共卫生 公共卫生
背景情况:
- 患有残疾儿童的父母往往会经历严重的压力,担忧和恐惧,对孩子的健康和生活的影响.
- 慢性悲伤 (CS) 是这些父母认可的情绪反应,但沙特阿拉伯的研究是有限的.
研究的目的:
- 检查慢性悲伤 (CS) 理论的应用,以了解沙特阿拉伯残疾儿童父母的经历.
- 评估该人口中CS的患病率和特征.
主要方法:
- 采用了横截面研究设计.
- 从89名残疾儿童的父母那里收集了数据,使用基于网络的问卷来测量CS.
主要成果:
- 父母报告说,与同龄人相比,他们的孩子的损失经历和差异水平相当高,特别是与孩子的残疾和发展里程碑有关.
- 对CS的感觉很普遍,其定期性质得分最高. 内部管理 (命运主义) 和外部管理 (社会支持) 被认为非常重要.
- 在悲伤,失去经验和差异 (r=0.765,P<.001) 之间发现了强烈的正相关性. 在CS和诊断后的时间之间没有发现显著的关系 (r=-0.009,P=.94).
结论:
- 这项研究证实了CS理论的适用性,在残疾儿童的沙特父母中发现了重大损失,差异和CS的感觉.
- 建议卫生保健工作者进行情绪查和提供情绪护理,以及支持CS管理的干预措施.
- 家长的接受并不否定CS;认识到它是悲伤的一部分,并利用内部/外部管理策略,对于改善父母和孩子的结果至关重要.
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