跨男性声音的患者报告结果测量:一个范围审查
Alexandra B Beam1, Michelle Adessa2, Rachel Mulheren3
1Department of Otolaryngology-Head and Neck Surgery, Johns Hopkins University School of Medicine, Baltimore, Maryland.
概括
跨男性语音护理的患者报告结果措施显示有效性有限. 护理障碍影响生活质量 (QOL) 和参与. 需要进一步的研究来改进这些措施.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 语音和语言治疗治疗
- 性别研究是性别研究.
背景情况:
- 性别确认的语音护理对于变性男性个体的自我认知至关重要.
- 语音治疗旨在改善与语音相关的生活质量 (QOL) 和参与.
- 对于这一群体,现有的患者报告结果指标 (PROM) 需要进行彻底评估.
研究的目的:
- 审查现有的PROM,评估与语音相关的QOL,参与和跨男性个体的性别一致性.
- 识别当前成果衡量的局限性及其适用性.
- 假设语音治疗后的质量生活和参与度有所改善.
主要方法:
- 进行了对在线数据库的范围审查.
- 搜索术语包括语音,语音治疗,变性男性客户和QOL.
- 如果报告了变性男性参与者,语音治疗参与和至少一个PROM,则将研究纳入.
主要成果:
- 包含了五项研究,使用了各种结果指标.
- 语音残疾指数 (VHI) 显示了多样化的结果,男性参与者报告了更高的残疾和护理障碍.
- 诸如犹他州沟通性别呈现量表 (U-GPS),沟通参与项目银行 (CPIB) 和跨性别语音问卷女性对男性 (TVQFtM) 等措施在有效性和代表性方面存在局限性.
结论:
- 目前用于跨男性语音护理的PROM具有有限的有效性,并依赖于小样本大小.
- 获得护理的障碍可能会对参与和质量生活产生负面影响.
- 未来的研究应该专注于前性验证仪器,确保代表性样本,并制定社区知情措施.
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