七个行动,以促进患者的作者和在同行评审出版物中的合作
Trishna Bharadia1,2, Jan Geissler3, Rosie Robson4
1Patient Author, The Spark Global, Buckinghamshire, UK.
The patient
|July 2, 2025
概括
医疗研究中的患者作者正在增长. 建议采取七项行动,以推进患者在出版物中的合作,从包含转向排除,为更大的患者声音代表提供理由.
科学领域:
- 医学研究 医学研究
- 出版道德 出版道德
- 患者参与 患者参与
背景情况:
- 患者参与研究加强了伙伴关系,并为出版物增加了价值.
- 目前的做法往往缺乏足够的患者代表在作者.
- 需要转向真正的患者伙伴关系.
研究的目的:
- 提出七个可行的步骤,以促进患者的作者权和在同行评审出版物中的合作.
- 倡导从以患者为中心转向患者伙伴关系的范式转变.
- 加强在科学文献中纳入和代表患者观点.
主要方法:
- 来自患者倡导者,患者和护理人员代表以及制药和医疗通信专业人员的专家共识.
- 借鉴研究,个人经验和专业见解.
- 关于七项具体行动的建议,以促进患者的作者.
主要成果:
- 呼吁转变出版实践,从寻找包括患者作者的理由到证明其排除的理由.
- 强调整体患者参与出版指导委员会.
- 为更好的识别和标准化提供"患者作者"附属元标签的建议.
- 突出需要指导患者作者对多样性,公平性和包容性的补偿.
- 倡导通过可访问性和开放获取来扩大出版物的覆盖范围.
结论:
- 实施拟议的行动将促进更大的患者包容性和公平的权力平衡在研究出版物.
- 加强患者与作者之间的伙伴关系对于改善沟通,理解和公平至关重要.
- 加强对患者作者的认可和补偿对于更具包容性的研究环境至关重要.
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