在中风幸存者的耻辱经历和应对策略:一个定性研究
Lina Song1, Xinbo Sun1, Chengxia Li1
1Zibo Central Hospital, Zibo, China.
Frontiers in psychology
|July 3, 2025
概括
卒中幸存者经历了严重的耻辱感,导致负面情绪和自尊心下降. 有效应对涉及适应性情绪调节和支持系统,以减轻这些挑战.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 卒中是全球死亡和残疾的主要原因之一.
- 对中风幸存者来说,耻辱是一个重要但未被充分研究的问题.
- 自我照顾的减少和依赖的增加有助于污名化.
研究的目的:
- 为了调查中风幸存者之间的耻辱的经历.
- 探索中风幸存者如何管理他们的症状和耻辱感.
- 了解中风幸存者的自我感知和情绪状态的变化.
主要方法:
- 使用现象学研究方法学的描述性定性研究.
- 在中国,与14名中风幸存者的半结构面试.
- 数据使用七步科拉伊兹基方法进行分析.
主要成果:
- 出现了三个主要主题:非适应性情绪调节 (悔,羞耻,抑郁),适应性情绪调节 (接受,支持系统) 和耻辱的起源 (家庭,朋友,自我,医疗人员).
- 非适应性反应包括悔,羞耻,悲伤,感觉到灾难,抑郁和自我价值降低.
- 适应性反应涉及积极的重新评估,调整,接受和利用支持系统.
结论:
- 调查结果可以为减少临床环境中的耻辱的策略提供信息.
- 医疗专业人员应该识别并解决中风幸存者所经历的耻辱感.
- 干预措施应考虑多维因素,包括个人,家庭,社会和机构方面.
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