患者和胃肠道科医生之间对克罗恩病的诊断和治疗的不同看法:一个多中心的回顾性研究
Zhenzhen Fan1, Ruixia Li1, Xiaoqi Zhang2
1State Key Laboratory of Holistic Integrative Management of Gastrointestinal Cancers and National Clinical Research Center for Digestive Diseases, Xijing Hospital of Digestive Diseases, Fourth Military Medical University, Xi'an, China.
医生和患者对克罗恩病 (CD) 管理的看法有很大的不同. 解决这些认知差距对于改善患者护理和治疗坚持至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 患者与医生之间的沟通
- 健康心理学健康心理学
背景情况:
- 医生对患者症状的评估可能与患者的主观经验不一致,影响克罗恩病 (CD) 管理.
- 了解CD诊断和治疗中的患者和医生的认知差异是必不可少的.
研究的目的:
- 为了比较CD患者和胃肠道科医生在诊断和治疗方面的认知差异.
- 确定影响医生参与CD患者治疗决策的关键驱动因素.
主要方法:
- 在中国39个IBD中心进行了回顾性多中心研究,涉及601名CD患者和181名胃肠科医生.
- 分析症状焦点,治疗目标,生物学的知识,随访偏好,经济负担承受能力和决策模型.
主要成果:
- 在症状焦点 (腹部疼痛与频繁访问),治疗目标 (粘膜愈合/缓解与生活质量) 和对生物学的理解方面观察到显著差异.
- 随访频率偏好 (医生:≤2个月与患者:6个月) 和愿意承担经济成本的重大差异.
- 对决策模式的看法不同,医生倾向于共享决策 (49.17%) 和患者表示较低的同意 (14.31%).
结论:
- 在疾病管理方面,CD患者和医生之间存在显著的认知差异,影响了随访和治疗选择.
- 需要有针对性的干预措施来弥合患者和医生的观点,并加强沟通.
- 未来的研究应该专注于赋予患者在健康管理和治疗决策中的权力.
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