对发展性语言障碍儿童家长的支持小组进行定性探索
Maura K O'Fallon1, Oluwakemi Jacobs1, Emily Rulewicz1
1Communication Sciences & Disorders Department, College of Health Science, University of Delaware, Newark.
Language, speech, and hearing services in schools
|July 3, 2025
概括
患有发育性语言障碍 (DLD) 的孩子的父母需要得到更好的支持. 这项研究发现,家长支持小组可以帮助解决他们的信息和情感需求,这些需求往往无法通过当前的服务得到满足.
科学领域:
- 语音和语言病理学 语言病理学
- 发展心理学 发展心理学
- 家庭支持服务 家庭支持服务
背景情况:
- 患有发育性语言障碍 (DLD) 的孩子的父母面临着独特的挑战.
- 现有的支持小组并没有专门适应DLD儿童的父母.
- 了解父母的需求对于制定有效的支持干预措施至关重要.
研究的目的:
- 探索患有DLD诊断的孩子的父母的支持需求.
- 调查父母对参与专门支持小组的看法.
- 确定支持小组如何满足这些家长的确定的需求.
主要方法:
- 对12名患有DLD儿童的照顾者进行了半结构化采访.
- 探讨了当前的支持,应对机制以及对支持小组的兴趣.
- 利用系统的文本缩写来对父响应进行主题分析.
主要成果:
- 父母报告说,在获得评估和治疗服务方面存在重大系统性障碍.
- 确定的主要需求包括更多关于DLD和可信资源的信息.
- 父母表示需要情感支持,提到心理健康挑战,孤立和内.
- 参与者对支持小组表现出兴趣,认为这是解决信息和情感需求的手段.
结论:
- 家长们对目前的DLD评估和治疗实践表示不满.
- 显然,医疗保健提供者需要更多的信息.
- 家长支持小组被提议作为一种灵活,低成本的干预措施,以解决抚养DLD儿童的父母未满足的需求.
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