在Cushing's Subreddit中对跨形手术的情感分析
Rose Dimitroyannis1, Sharanya Thodupunoori1, Ringo Leung1
1Pritzker School of Medicine, University of Chicago, Chicago, Illinois, United States.
Journal of neurological surgery. Part B, Skull base
|July 7, 2025
概括
由于库辛病 (CD) 经历过跨形手术 (TSS) 的患者经常报告复苏困难,但长期结果绝大多数是积极的. 负面情绪经常与获得外科护理的挑战有关.
科学领域:
- 内分泌学 在内分泌学.
- 神经外科 神经外科
- 患者报告的结果
背景情况:
- 库辛病 (CD) 是一种罕见的内分泌疾病,具有显著的发病率.
- 跨形手术 (TSS) 是CD的主要治疗方法,旨在实现生化缓解.
- 对CD的TSS体验的患者观点仍然未得到充分研究.
研究的目的:
- 为了分析患者的情绪和经验与转形手术 (TSS) 库辛氏病 (CD).
- 利用在线患者社区 (Reddit) 来对治疗结果进行定性和情绪分析.
主要方法:
- 来自"Cushing's" subreddit 的帖子被分析为与外科管理相关.
- 所有时间的最高评级的帖子都被选择用于参与度分析.
- 使用了描述性统计,情绪分析 (TextBlob) 和定性主题分析.
主要成果:
- 在68个分析的帖子中,53个 (77.9%) 涉及接受TSS的患者.
- 虽然68%的人报告说恢复很困难,但91.3%的人指出长期结果是积极的.
- 负面情绪与获得医疗保健的问题有关;积极情绪关注的是长期结果.
结论:
- 这项研究通过使用社交媒体数据,为CD患者对TSS的感知提供了新的见解.
- 对于CD的TSS的长期结果通常被患者积极地看待.
- 难以获得护理的困难是负面患者情绪的重要来源.
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