家庭参与从预期的儿童死亡中学习:英国父母的定性研究
Joanna Garstang1,2, Anna Pease3, Karen Shaw1
1College of Medicine and Health, University of Birmingham, Birmingham, UK.
Child: care, health and development
|July 7, 2025
概括
涉及关键工作者的儿童死亡评估 (CDR) 可以通过提供答案和支持来改善悲伤的父母的经历. 然而,不清楚的角色和不良沟通可能会导致负面的结果,突出需要更好的关键员工培训.
科学领域:
- 儿科 儿科 儿科
- 悲伤研究 悲伤研究
- 改善医疗保健质量 改善医疗保健质量
背景情况:
- 丧亲的父母经常对孩子的疾病和照顾有着未解决的问题,即使死亡原因已经确定.
- 儿童死亡审查 (CDR) 过程旨在全面了解儿童死亡率,以提高未来的护理.
- 英国的指导方针要求向家长提供关于CDR的信息,征求他们的意见,分享结果,并提供专门的关键工作者来支持.
研究的目的:
- 探索参与儿童死亡审查 (CDR) 过程的父母在孩子预期死亡后的经历.
- 在CDR框架内识别导致父母积极和消极体验的因素.
主要方法:
- 与22名在2021-2022年期间在英格兰死亡的儿童 (1个月至18岁) 的父母进行了半结构面试.
- 参与者通过社交媒体,慈善机构和医院招募.
- 采访数据使用模板主题分析来分析.
主要成果:
- 出现了两个主要主题:父母对CDR的积极和消极经验.
- 积极的经验与理解CDR的目的,获得答案,放心,感觉自己的参与可以帮助他人,通常由关键工作者促进.
- 负面经验源于关键工作者角色的混乱,缺乏参与或理解CDR,以及无助的信息,沟通和支持是关键因素.
结论:
- 关键工作者在促进家长参与儿童死亡审查 (CDR) 过程中发挥着至关重要的作用.
- 建议加强关键工作人员的资源和培训,以改善儿童死亡的学习和为家庭提供丧亲支持.
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