探索家长对照养有营养困难和发育障碍的孩子的经验和看法:一项描述性的定性研究
Amanda Shee Hwee Yap1, Marion Margaret Aw2,3, Jing Shi Chua1
1Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.
发育障碍儿童的父母面临着食挑战,包括导航食偏好和获得支持. 增强资源和医疗保健提供者的意识对于改善养实践和儿童结果至关重要.
科学领域:
- 儿童营养学 儿童营养学
- 发育障碍 发育障碍 发育障碍
- 定性研究是指质量研究.
背景情况:
- 发育障碍儿童经常有食困难.
- 父母在应对这些挑战方面的经验是复杂而多方面的.
- 了解这些经验对于开发有效的支持系统至关重要.
研究的目的:
- 探索新加坡父母管理发育障碍儿童食困难的经验和看法.
- 确定这些家长面临的关键主题和挑战.
- 为制定有针对性的干预和支持策略提供信息.
主要方法:
- 采用了一种描述性的定性研究设计.
- 20名父母从新加坡的一家儿科养诊所招募.
- 通过半结构面试收集数据,并使用专题分析进行分析.
主要成果:
- 出现了四个主要主题:养作为一个"猜测"游戏,相互理解的重要性,围绕残疾和养的信念,以及获得足够支持的挑战.
- 九个子主题详细阐述了这些核心发现.
- 父母强调了家庭和家庭助手的工具支持,以及在线同行团体的情感支持的价值.
结论:
- 父母在适应食偏好,管理照顾者的不同观点以及获得适当支持方面遇到重大挑战.
- 需要增加研究和量身定制的干预措施来帮助父母.
- 建议制定政策变化和积极参与医疗保健提供者,以改善发育障碍儿童的食支持和结果.
更多相关视频
07:56Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
Published on: September 19, 2019
06:16Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
相关概念视频
Parental Care
Parenting Styles
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Taste Buds and Receptors
Parentral Nutrition: Centeral and Peripheral Parental Nutrition
PN can be administered through two primary routes:
1. Central Parenteral Nutrition (CPN):
CPN involves delivering a high concentration of nutrients through a large vein. This is typically achieved using a Peripherally Inserted Central Catheter (PICC) or,...
Nursing Process for Patient and Caregiver Teaching I: Assessment and Diagnosis
It is critical to determine the patient's learning needs during the assessment. Determination of learning needs compounds data...
Enteral Nutrition II: Nasointestinal and Gastrostomy Feeding
Nasointestinal Feeding
Nasointestinal feeding involves placing a tube...
