探索脑儿童的综合护理:利益相关方分析
Silje Askeland1, Veslemøy Guise2, Karina Aase2,3
1SHARE - Centre for Resilience in Healthcare, Faculty of Health Sciences, University of Stavanger, Stavanger, Norway. silje.s.askeland@uis.no.
BMC health services research
|July 7, 2025
概括
脑性麻 (CP) 儿童的综合护理受到分散服务的挑战,原因是许多利益相关者角色不清楚. 改善医疗保健,教育和社会服务之间的协调对于满足儿童和家庭需求至关重要.
科学领域:
- 儿科卫生保健服务 儿科卫生保健服务
- 康复医学是一种康复医学.
- 家庭为中心的护理.
背景情况:
- 患有脑的儿童需要协调服务,综合护理模式是标准.
- 协调和协作方面的挑战导致服务分散,无法满足CP儿童及其家人的需求.
- 这项研究解决了了解CP护理中利益相关者的角色的需要,以改善综合服务提供.
研究的目的:
- 确定参与CP儿童及其家属的照顾和随访的所有利益相关者.
- 探索这些利益相关者的角色,责任和关系.
- 为增强CP儿童综合护理模式提供见解.
主要方法:
- 进行了全面的利益相关者分析.
- 数据收集包括与儿童,家长和服务提供商的采访,多学科会议的观察和文档审查.
- 六个家庭有8至12岁的儿童患有CP,并与已识别的服务提供商一起参与.
主要成果:
- 在14个群体中确定了42个利益相关者,提供医疗保健,教育,社会和家庭支持.
- 利益相关者参与的时间和持续时间各不相同,重叠和不清楚的责任导致了患者随访缺口.
- 关系从完全融入到没有接触,受到不同的法规和机构背景的影响.
结论:
- 综合照顾CP儿童是复杂的,因为许多多部门的利益相关者在不同的监管框架内运作.
- 虽然不同的利益相关者角色可以促进整体方法,但缺乏明确的指导方针会阻碍集体理解,并可能造成未得到满足的需求.
- 需要对儿童,家庭和提供者之间的协作经验进行进一步的研究,以改善CP的综合服务.
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