缺少服务的患有转移性乳腺癌的患者群体:进展和剩余挑战的回顾
Fatima Cardoso1, Rachel Wuerstlein2, Tomoyuki Aruga3
1Advanced Breast Cancer Global Alliance, Lisbon, Portugal.
The breast journal
|July 8, 2025
概括
转移性乳腺癌 (mBC) 不成比例地影响服务不足的患者群体 (UPPs),原因是诊断延迟和治疗机会不平等. 解决这些差异需要改善医疗护理导航和为所有mBC患者提供个性化的护理.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 健康 公平 卫生 公平
背景情况:
- 转移性乳腺癌 (mBC) 是女性癌症死亡的主要原因,严重的差异影响了服务不足的患者群体 (UPP).
- 尽管取得了进展,但在整个mBC治疗途径中,UPPs面临着不平等的机会,突出了关键的未满足需求.
研究的目的:
- 确定和优先考虑mBC的UPP未得到满足的需求.
- 提出解决方案,并倡导改善UPPs的护理服务.
主要方法:
- 召集国际专家工作组 (服务不足患者人口联盟工作组) 在2022年至2023年期间举行会议.
- 分析了包括诊断,导航,治疗和生活质量在内的关键未满足需求.
主要成果:
- 由于医疗保健系统的呈现问题和缺乏专家意识,确定了延迟的mBC诊断.
- 突出了从低于最佳的多学科护理和专业间沟通的路径导航中的困难.
- 注意到获得最佳治疗和支持性护理的机会不平等,受无意识偏见和财务毒性的影响.
- 由于有限的共享决策和个性化护理,观察到对生活质量的负面影响.
结论:
- 迫切需要解决阻碍对患有mBC的UPPs提供公平护理的系统性障碍.
- 呼吁采取全球行动,改善mBC护理,重点关注患者的偏好和个性化方法.
- 支持UPP的倡议已经存在,但需要立即关注和系统性改变,以解决严重的护理差距.
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