患有可见皮肤疾病的患者的外部耻辱:一种定性研究
Hongjin Guan1, Zhongling Luo2, Yehong Kuang2
1Department of Social Medicine and Health Management, Xiangya School of Public Health, Central South University, Changsha 410013. guanhongjin@163.com.
概括
像牛皮,白风和这样的可见皮肤疾病 (VSD) 在中国导致了显著的外部耻辱. 避免疾病驱动着耻辱行为,影响患者在各种社会环境,而牛皮患者承受着最高的负担.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 可见皮肤疾病 (VSD) 带来了独特的挑战,往往导致公众的耻辱.
- 与VSD相关的外部耻辱可能会给患者带来相当大的心理和社会负担.
- 有限的研究存在于中国的VSD患者对外部耻辱的具体经验.
研究的目的:
- 探索中国VSD患者所经历的外部耻辱的性质和程度.
- 确定污名化发生的社会环境和污名化行为的潜在动机.
- 建立一个开发测量工具和干预措施的基础,以解决与VSD相关的耻辱感.
主要方法:
- 这是一项定性研究,涉及23名患有牛皮,白或的门诊患者.
- 进行了深入的采访,以探索在各种社会背景下对外部耻辱的经验.
- 数据使用Mayring的定性内容分析和主题分析进行分析.
主要成果:
- 患有VSD的患者报告在家庭,社区,医疗保健和娱乐场所经历了外部的耻辱.
- 害怕传染和社交距离是污名化行为的主要驱动因素.
- 牛皮患者在所有环境中都报告了耻辱感,而白风和患者在某些情况下报告了耻辱感.
结论:
- 病患者面临着显著的外部耻辱,而牛皮患者承担的负担更重.
- 公共教育对于解决关于VSDs的误解和减少疾病避免至关重要.
- 干预措施应针对家庭,学校,社交网络,医疗保健和结构层面的耻辱,以保护患者的福祉.
相关概念视频
Skin Diseases and Disorders
4.2K
Skin is the first line of defense and encounters a variety of microbes. Some pathogenic strains are often the cause of a broad range of infections of the skin and other body systems. These conditions can affect people of all ages and may have different causes, including genetic factors, infections, autoimmune reactions, environmental factors, and lifestyle choices.
Gram-positive Staphylococcus spp. and Streptococcus spp. are responsible for many of the most common skin infections. However, many...
Gram-positive Staphylococcus spp. and Streptococcus spp. are responsible for many of the most common skin infections. However, many...
4.2K
Skin Cancer
4.6K
Skin cancer is a type of cancer that occurs when there is an abnormal growth of skin cells, usually triggered by damage to the DNA within the skin cells. It is primarily caused by exposure to ultraviolet (UV) radiation from the sun or artificial sources like tanning beds. Skin cancer is the most common type of cancer worldwide, and its incidence continues to rise.
Basal Cell Carcinoma (BCC): BCC is the most common type of skin cancer, accounting for about 80% of cases. It typically develops in...
Basal Cell Carcinoma (BCC): BCC is the most common type of skin cancer, accounting for about 80% of cases. It typically develops in...
4.6K
Ostomy Care
852
Introduction
An ostomy is a surgical procedure that creates an artificial opening from the intestines to the outside of the body, allowing for the rerouting of effluent. This opening is known as a stoma. A stoma usually protrudes above the skin surface, appearing pink or red, moist, and round, and it lacks nerve sensations.
There are different types of ostomies, including colostomies, ileostomies, and urostomies:
An ostomy is a surgical procedure that creates an artificial opening from the intestines to the outside of the body, allowing for the rerouting of effluent. This opening is known as a stoma. A stoma usually protrudes above the skin surface, appearing pink or red, moist, and round, and it lacks nerve sensations.
There are different types of ostomies, including colostomies, ileostomies, and urostomies:
852
Changes in Skin Color: Clinical Perspectives
2.2K
The first thing a clinician sees is the skin, so the examination of the skin should be part of any thorough physical examination. Most skin disorders are relatively benign, but a few, including melanomas, can be fatal if untreated. A couple of the more noticeable disorders, albinism and vitiligo, affect the appearance of the skin and its accessory organs.
Albinism
Albinism is a genetic disorder that affects (completely or partially) the coloring of skin, hair, and eyes. The defect is primarily...
Albinism
Albinism is a genetic disorder that affects (completely or partially) the coloring of skin, hair, and eyes. The defect is primarily...
2.2K
Clinical Applications of Epidermal Stem Cells
2.8K
Epidermal stem cells (EpiSCs) are mainly located at the basal layer of the epidermis. These cells repair minor injuries of the skin and replace dead skin cells. However, EpiSCs’ cannot heal severe wounds such as major burns or those from diabetes or hereditary disorders. In such cases, culturing the epidermal stem cells from the patient is possible and has yielded successful treatment options, such as laboratory-grown skin grafts. These grafts are synthesized using a patient’s own...
2.8K


