对患者和护理人员参与CKD研究的系统审查
Talia Gutman1, Dale Coghlan2, Jonathan C Craig2
1Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Kidney international reports
|July 9, 2025
概括
消费者参与慢性病 (CKD) 研究往往是有限的,患者和护理人员的决策权是最小的. 加强资源和评估对于更具影响力的CKD研究和实践至关重要.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
背景情况:
- 消费者对慢性病 (CKD) 研究的有限参与可能会降低其现实世界的相关性和影响.
- 患有CKD的患者和护理人员是关键利益相关者,他们的观点对于推进研究至关重要.
研究的目的:
- 在已发表的CKD研究中绘制消费者参与的现状.
- 确定在CKD研究中的模式,目的和参与水平.
主要方法:
- 在2023年8月之前,对电子数据库进行了系统的搜索.
- 使用描述性合成分析了106篇详细介绍消费者参与CKD研究的文章.
- 数据被编码为参与定义,目的,选择,研究阶段,资源和评估.
主要成果:
- 来自15个国家的4500多名消费者参与了106项研究.
- 大多数研究都定义了消费者参与,但消费者主要是作为具有有限决策权力的信息提供者.
- 在确定优先事项和研究设计方面,参与度最高,在实施和评估方面参与度较低.
结论:
- 消费者参与CKD研究往往局限于具有有限影响力的特定任务.
- 需要增加资源 (金融,后勤,培训) 来促进更有意义的消费者参与.
- 对消费者参与的一致评估和报告对于提高研究质量和成果至关重要.
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