开发一种技术增强的患者报告的炎症性肠病结果评估系统:评估生存质量的多维方法
1Changzhou Hospital of Traditional Chinese Medicine, Changzhou, China.
一个新的炎症性肠病患者报告结果 (IBDPRO) 系统准确评估患者的生存质量. 这种技术驱动的工具与疾病活动有很好的相关性,有助于个性化护理.
科学领域:
- 医学评估 医学评估
- 患者报告的结果
- 数字健康数字健康
背景情况:
- 炎症性肠病 (IBD) 显著影响患者的长期健康和生存质量.
- 技术驱动的评估工具对于监测IBD和个性化治疗至关重要.
- 现有的方法可能缺乏对患者福祉的全面和动态评估.
研究的目的:
- 开发一种使用患者报告结果 (IBDPRO) 的标准化,技术增强的IBD评估系统.
- 为了使IBD患者的生存质量的全面和动态评估.
- 整合专家共识和数字平台,以进行可靠的评估.
主要方法:
- 建立了一个基于三维质量结构模型的多维评估系统.
- 通过Delphi方法,半结构面试和分析层次过程 (AHP) 进行权衡,结合了专家的共识.
- 利用基于REDCap的数字平台进行数据收集和患者随访;分析与疾病活动指数 (PMS,HBI) 和自我评估的相关性.
主要成果:
- 获得了高的专家权威系数 (0.926,0.931) 和显著的协议 (肯德尔的W = 0.2260.239,P < 0.01).
- 证明了生存质量和疾病活性之间的强烈负相关性 (斯皮尔曼r = -0.76,P < 0.001).
- 显示了生存质量和自我感知状况变化之间的强烈正相关性 (r = 0.79,P < 0.001);系统可靠性,有效性和响应性得到验证.
结论:
- IBDPRO系统提供了一种科学严格,技术综合的方法来评估IBD患者的生存质量.
- 促进数据驱动的临床决策,以改善患者管理.
- 支持在IBD管理中转向个性化,以患者为中心的医疗保健.
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