坚持的摆动:解读性现象学分析牛皮治疗的停止
Zhanshuo Xiao1, Yilin Jiang2, Narina A Samah2
1Department of Dermatology, Guanganmen Hospital, Beijing, 100053, People's Republic of China.
Patient preference and adherence
|July 11, 2025
概括
牛皮患者由于医疗问题,财务问题和副作用而停止治疗. 由于希望,社会因素,症状复发,经济救济和医疗保健支持,他们重新开始治疗.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 牛皮是一种慢性,免疫介导的皮肤疾病,需要终身治疗.
- 治疗的坚持是牛皮患者面临的重大挑战.
- 停止治疗导致疾病复发和更差的健康结果.
研究的目的:
- 探索牛皮患者在治疗坚持方面所经历的经验.
- 确定影响治疗中止和恢复的因素.
主要方法:
- 现象学研究方法与16名停止和恢复治疗的参与者.
- 半结构化,深度采访. 半结构化,深度采访.
- 解释性现象分析 (IPA) 和Bronfenbrenner的过程-人-背景-时间 (PPCT) 模型.
主要成果:
- 停药的四个主题是:医疗保健的不稳定性,对治疗的信心丧失,财务压力,对副作用的担忧.
- 恢复治疗的五个主题:新疗法的希望,耻辱和社会压力,严重症状复发,经济救济,医疗专业人员的支持.
结论:
- 复杂的因素影响牛皮治疗的坚持.
- 现象学和PPCT模型揭示了个人和环境影响的相互作用.
- 以患者为中心的适应性方法对于改善坚持和生活质量至关重要.
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