系统性硬化症患者报告的结果:对生活质量和疾病负担的见解

Alain Lescoat1,2,3, Yen T Chen3,4, Dinesh Khanna3

  • 1Department of Internal Medicine and Clinical Immunology, Rennes University Hospital.

概括

患者报告的结果测量 (PROM) 对于评估系统性硬化症 (SSc) 治疗至关重要. 新的以患者为中心的倡议和综合指数旨在改善在临床试验中评估治疗疗效的方式.

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