挑战与机遇:对澳大利亚头癌支持小组当前状况的混合方法研究
Xiaojing Zhou1, Ashleigh R Sharman1,2, Rebecca L Venchiarutti3,4
1Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Camperdown, NSW, 2050, Australia.
概括
澳大利亚头癌 (HNC) 支持小组面临行政和后勤方面的挑战. 在线格式可能会提供更可持续的解决方案,特别是对于农村患者,突出需要改进促进者培训和资源.
科学领域:
- 在瘤学瘤学.
- 患者支持服务服务.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 头癌 (HNC) 支持小组对于患者的福祉至关重要.
- 这些团体提供了至关重要的情感和实际援助.
- 了解他们目前在澳大利亚的运营环境至关重要.
研究的目的:
- 检查澳大利亚HNC支持小组的建立,实施和促进情况.
- 确定资源,指导方针和辅导员培训方面的现有差距.
- 为提高支持小组有效性和可持续性的战略提供信息.
主要方法:
- 一项混合方法研究,涉及澳大利亚HNC支持小组的促进者.
- 通过在线调查问卷收集和描述性分析的定量数据.
- 通过对开放式答案的诱导性内容分析分析的定性数据.
主要成果:
- 共有19名辅导员参与,这些团体主要是城市 (67%) 和医院 (50%).
- 关键的挑战包括管理,内容和位置;农村群体面临的访问问题.
- 只有32%的人接受了指导方针,42%的人接受了培训,并指出需要更多的在线选择.
结论:
- 高企支持小组遇到重要的行政和后勤障碍.
- 在线支持小组提供了一个潜在的更可持续的模式,特别是对于农村人口.
- 加强行政支持,资金和全面的促进者培训对于长期可持续性至关重要.
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