从那些生活过的人那里学习:一个范围的回顾 探索生活经验共同设计在饮食障碍研究方法学的参与
Jane Miskovic-Wheatley1, Sabina Vatter1, Shu Hwa Ong1
1The InsideOut Institute for Eating Disorders, Faculty of Medicine and Health, University of Sydney and Sydney Local Health District, Sydney, New South Wales, Australia.
The International journal of eating disorders
|July 12, 2025
概括
将生活经验纳入饮食障碍研究的范围越来越大,但参与方法和报告方式各不相同. 需要更详细的报告和实际指导来改善研究和结果.
科学领域:
- 饮食障碍研究 饮食障碍研究
- 患者和公众参与.
- 医疗服务研究 医疗服务研究
背景情况:
- 越来越多的需求涉及有生活经验的人参与健康研究和政策,特别是在饮食障碍.
- 尽管进行了广泛的研究,但在了解饮食障碍风险,起源,发病,进展和干预方面仍然存在重大知识差距.
- 需要关于生活经验如何被考虑和整合到饮食障碍研究方法的证据.
研究的目的:
- 调查生活经验的证据,考虑和整合进食障碍研究方法.
- 在已发表的饮食障碍研究中包括生活经验的趋势和变化.
- 评估有关生活经验参与的方法报告的质量和细节.
主要方法:
- 使用范围审查方法来系统地搜索和综合相关文献.
- 在六个主要的学术数据库中进行了研究.
- 生活经验的投入被整合到研究构想,搜索策略开发和数据分析中.
主要成果:
- 最初确定了超过6553篇文章,其中76篇符合审查的纳入标准.
- 在过去的五年中,人们观察到生活经验在研究中显著增加,主要集中在英国和澳大利亚.
- 参与的方法从机会主义到完全整合,在方法报告,术语和知识共享方面存在很大差异. 研究人员的反射性和生活经验描述的代表性通常是有限的.
结论:
- 虽然结合实践经验的研究越来越多,但参与的意义和深度有很大差异.
- 目前还缺乏详细的方法描述和实际实施指南,用于在饮食障碍研究中涉及生活经验.
- 优先考虑资源,时间和建立信任,以及放大报告实践经验努力的价值,对于解决知识差距和提高患者结果至关重要.
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