西班牙裔儿科脏病患者获得医疗保健的障碍:一项KICK研究
Debora Matossian1, Carlos C Becerril Romero2, Priya S Verghese2
1Ann and Robert H. Lurie Children's Hospital, 225 E. Chicago Ave Box 37, Chicago, IL, USA. dmatossian@luriechildrens.org.
Pediatric nephrology (Berlin, Germany)
|July 12, 2025
概括
患有慢性病 (CKD) 的西班牙裔儿童面临着严重的医疗保健接入障碍. 西班牙语家庭和贫困地区的家庭面临更大的挑战,强调了有针对性的干预措施的必要性.
科学领域:
- 儿科脏病学 儿科脏病学
- 医疗保健服务研究 医疗服务研究
- 健康差异 在健康上的差异
背景情况:
- 西班牙裔儿童患有慢性病 (CKD) 的负担很高.
- 获得医疗护理的障碍加剧了健康差异,并影响了这一群体的护理质量.
- 了解这些障碍对于改善健康结果至关重要.
研究的目的:
- 识别和描述西班牙裔儿童慢性病患者在获得医疗保健方面面临的障碍.
- 探索社会经济因素和语言偏好对这些障碍的影响.
主要方法:
- 从2021年1月到6月,向西班牙裔年轻成年人或儿科患者 (18岁以下) 的父母进行了自愿的"护理障碍问卷".
- 该调查以英语和西班牙语提供.
- 区域贫困指数 (ADI) 被用作社会经济劣势的标记,以及来自医疗记录的社会人口统计和健康数据.
主要成果:
- 技能和务实障碍占主导地位,平均得分分别为74和75 (共100分).
- 西班牙语家庭报告的技能障碍明显更高 (p < 0.001).
- 较高的ADI得分与增加的总障碍相关 (p = 0.04),这种关系被首选的语言进一步放大 (p = 0.003).
结论:
- 患有脏疾病的西班牙裔儿科患者遇到实质性障碍,影响了他们的医疗保健参与.
- 西班牙语家庭受到了不成比例的影响.
- 需要进一步的研究,以告知政策和计划的变化,旨在减少儿童科护理的差异.
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