同行支持计划对患有慢性疾病的青少年的长期影响
Emma Anderson1, Rebecca Powers1, Ken C Pang1,2,3
1Department of Adolescent Medicine, The Royal Children's Hospital, Parkville, Australia.
Journal of paediatrics and child health
|July 13, 2025
概括
慢性疾病同行支持 (ChIPS) 计划帮助患有慢性疾病 (CI) 的青少年感到归属感,并增加了他们的自我效能. 这项同行支持计划对面临社会孤立风险的年轻人产生了积极的影响.
科学领域:
- 青少年健康 青少年健康
- 心理社会支持 心理社会支持
- 慢性疾病管理 慢性疾病管理
背景情况:
- 患有慢性疾病 (CI) 的青少年经常面临心理社会挑战和社会孤立.
- 同行支持计划提供了一个独特的连接和共享经验的途径.
- 墨尔本皇家儿童医院的慢性疾病同行支持 (ChIPS) 计划旨在减轻这些挑战.
研究的目的:
- 量化评估ChIPS计划的纵向影响.
- 评估参与者之间的归属,社会支持,生活满意度和自我效能方面的变化.
- 了解同行支持对CI青少年的长期益处.
主要方法:
- 一项涉及从2019年4月到2024年5月参与ChIPS计划的青少年的定量研究.
- 经过验证的调查问卷评估了归属感,社会支持,生活满意度和自我效能.
- 数据是在两年内四个时间点收集的:程序前,程序后以及程序后12个月和24个月.
主要成果:
- 参与者报告说,在ChIPS计划中,他们有很高的归属感.
- 在整个研究期间,生活满意度和感知到的社会支持保持稳定.
- 随着时间的推移,观察到一般自我有效性和疾病特定自我有效性的显著增加.
结论:
- 奇普斯计划是患有慢性疾病 (CI) 的青少年的宝贵资源.
- 它有效地培养了归属感,打击了社会孤立.
- 该计划有助于提高治疗慢性病的自我效能.
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