提高注册表的影响力:通过消费者共同设计,将注册表输出转化为消费者友好的信息 (CoFI项目)
Sarah Eley1, Caitlin Wyman2,3, Cindy Turner1
1South Australian Health and Medical Research Institute Registry Centre, South Australian Health and Medical Research Institute, Australia.
概括
患者登记册可以赋予消费者权力. 与消费者共同设计资源将复杂的注册表数据转化为可访问的信息,促进知情的医疗保健决策和改善健康结果.
科学领域:
- 医疗信息学 医疗信息学
- 患者参与 患者参与
- 卫生沟通健康沟通
背景情况:
- 医疗保健注册表追踪治疗途径和结果,以推动改进.
- 注册表数据通常是技术性的,限制了消费者理解和使用.
- 国家战略鼓励注册表与消费者共同设计资源.
研究的目的:
- 从注册表输出中开发可访问,消费者友好的资源.
- 为了使患者能够利用注册数据做出明智的医疗保健决策.
主要方法:
- 一个为期12个月的三阶段共同设计过程 (建立,咨询,资源开发).
- 通过多种道招募生活经验和一般消费者.
- 对原型进行代反,平衡科学准确性与可访问性.
主要成果:
- 九位消费者共同设计了六个资源:信息图表,事实表,动画,视频和小册子.
- 资源是根据消费者需求和偏好量身定制的.
- 成功地将复杂的注册表输出翻译成可以理解的格式.
结论:
- 共同设计对于将注册表输出转化为消费者友好的资源是有价值的.
- 有效的规划,沟通和期望管理对于成功至关重要.
- 这个过程支持基于证据的资源开发和卫生组织的采用.
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