提供者在多发性硬化症中系统管理患者报告结果的经验:一种定性子研究
Nathan Y Chu1, Aila Jamali1, Yazid N Al Hamarneh2,3
1Faculty of Medicine and Dentistry, Division of Neurology, Department of Medicine, University of Alberta, Edmonton, Canada.
Neurology. Clinical practice
|July 14, 2025
概括
患者报告的结果措施 (PROM) 可以通过参与患者和提高效率来改善多发性硬化症 (MS) 护理. 然而,将PROM整合到多发性硬化诊所面临的障碍包括工作流程中断和技术问题.
科学领域:
- 神经学 神经学
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
背景情况:
- 患者报告的结果指标 (PROM) 对于评估患者在多发性硬化症 (MS) 护理方面的经验是有价值的.
- 在MS门诊诊所中,PROM的例行整合仍然有限.
- 了解提供者的观点对于成功实施PROM至关重要.
研究的目的:
- 探索医疗保健提供者关于将PROM整合到MS (PwMS) 患者的临床实践中的观点.
- 识别MS护理环境中PROM采用的促进者和障碍者.
主要方法:
- 质量副研究涉及10个国家医疗保健提供者的半结构面试.
- 使用混合的诱导和演方法,对采访成绩单进行主题分析.
- 参与者包括神经科医生,MS护士从业人员和MS注册护士.
主要成果:
- 提供者确定了PROMs的好处,包括改善患者参与,目标设定,效率和满意度.
- 障碍包括临床工作流程中断,技术挑战,对PROM有效性的怀疑以及道德考虑.
- 建议的未来机会包括访问前的PROM和EHR集成.
结论:
- 多发性硬化症提供者将PROM视为优化患者护理和体验的宝贵辅助工具.
- 解决已识别的障碍对于MS诊所中常规PROM的战略实施至关重要.
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