与与国家COVID队列协作 (N3C) 访问和共享EHR数据相关的机构特征
medRxiv : the preprint server for health sciences
|July 14, 2025
概括
拥有国家转化科学进步中心资金和生物医学信息学资源的机构更有可能与国家COVID队列协作 (N3C) 共享临床数据. 了解这些因素可以改善未来的数据共享计划.
科学领域:
- 临床信息学 临床信息学
- 健康 数据科学 数据科学
- 翻译研究是翻译研究.
背景情况:
- 国家COVID队列协作 (N3C) 是美国主要的COVID-19研究数据库.
- 并非所有机构都会向N3C提供数据,这限制了全面的研究.
- 识别影响数据共享的因素对于扩大N3C的实用性至关重要.
研究的目的:
- 确定与与N3C共享临床数据相关的机构特征.
- 确定未来数据共享工作的潜在障碍和促进者.
主要方法:
- 利用公开可用的数据来识别机构变量.
- 专注于与机构领导力,信息化能力和资源相关的变量.
- 与N3C共享数据的机构与不共享数据的机构的比较特征.
主要成果:
- 与N3C共享数据的机构更有可能获得国家推进翻译科学中心 (NCATS) 资金.
- 附属的生物医学信息学部门,中心或研究所与N3C数据共享有关.
- 与N3C数据共享相关的美国医学信息学院教师的活跃研究员的存在.
结论:
- 特定的机构因素,包括NCATS资金和信息基础设施,与N3C数据共享有关.
- 其他未测量的因素可能会影响机构数据共享决策.
- 了解动机和威因素对于促进研究中开放的临床数据共享至关重要.
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