一个护士带领的家庭支持干预癌症家庭生活:一个基于经验的共同设计研究研究
Nerea Azcárate-Cenoz1,2, Cristina Alfaro-Díaz1,2, Rahel Naef3,4
1Department of Adult Nursing, School of Nursing, University of Navarra, Pamplona, Spain.
Journal of advanced nursing
|July 15, 2025
概括
护士,患者和家人共同设计了Family CARE-ON干预措施,使用基于经验的共同设计来支持癌症患者及其家人. 这种协作方法确保了干预措施满足瘤护理的现实需求.
科学领域:
- 瘤科 护理 护理专业
- 患者和家庭支持干预措施 干预措施
- 定性研究方法 定性研究方法
背景情况:
- 癌症不仅深深地影响患者,还会影响他们的家人.
- 现有的瘤护理模式可能无法完全满足面临癌症的家庭的整体需求.
- 需要一个结构化,共同设计的干预措施,以加强家庭对癌症护理的支持.
研究的目的:
- 为癌症患者及其家属共同设计由护士领导的家庭支持干预.
- 确保干预与患者和家人的需求和期望保持一致.
- 促进干预在临床实践中的可行性.
主要方法:
- 在医院环境中采用基于经验的共同设计 (EBCD) 方法.
- 在整个八步EBCD过程中,涉及护士,患者和家庭成员.
- 利用观察,采访,反和共同设计活动来收集见解.
主要成果:
- 确定了四个主要主题:"癌症:家庭事务"",患者和家庭的需求"",基于信任的护士与家庭关系"和"面向家庭的护理障碍/促进者".
- 利益相关者确定了干预的关键领域:家庭支持,沟通,情感表达和信任.
- 开发了Family CARE-ON干预方案,其中有三个核心组成部分:参与,支持和赋权.
结论:
- 基于经验的共同设计方法有效地让利益相关者参与开发瘤学中的家庭支持干预.
- 共同设计的干预措施"Family CARE-ON"是基于那些受癌症影响的人的经验和观点.
- 需要进一步的研究来评估干预的可行性,有效性,实施和可扩展性.
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